E-cigs NOT helping my daughter with ulcerative colitis, don't understand

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J.R. Bob Dobbs

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UC is a disorder of the colon that causes bleeding, pain, and excessive bowel movements, and other complications. There's a link between smoking and remission.
i brought it up because wikipidea shows a link between mouth ulcers and that UC. i have no idea what either one is, just trying to help.
 

Tanti

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i brought it up because wikipidea shows a link between mouth ulcers and that UC. i have no idea what either one is, just trying to help.

When I vape lemon or orange juice I get canker sores in my mouth. PG is a germacide so its killing the good and bad bacterias in the mouth to a small amount. That can brake down the natrual flora in the mouth causing acid to brake down the mucus membranes and then it doesnt take much for a sore to start. I stop using the lemon or orange and the canker sores leave. Im not sure if that has anything to do with UC tho. People that use inhalers have the same problem.
I dont think enought PG would get down to the place where UC happens to cause anything.
 

WillyB

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...and she's in a lot of pain, losing a lot of blood and has been vaping continuously for a year. I've seen some posts on other UC forums where people have gone back to 3 to 5 cigs a day because the general consensus there seems to be that there must be something in cigarettes besides nicotine that helps with UC. To go back to smoking would really suck....
No offence but "3 to 5 cigs a day" hardly seems like "back to smoking" to me.

All drug company meds have side effects, folks often end up trading one form of of mortality for another and don't even know it.

If I was "in a lot of pain, losing a lot of blood " and it could all stop by possibly only smoking 3 cigs a day I'd be running to get a pack.

Not trying to give you a hard time.

Have you also taken a good look at low carb diets? You need to look towards respected doctors and experts from outside the USA.

Two well respected books and authors.

Breaking the Vicious Cycle: Intestinal Health Through Diet: Elaine Gloria Gottschall: 9780969276814: Amazon.com: Books

Life Without Bread: How a Low-Carbohydrate Diet Can Save Your Life: Christian B. Allan, Wolfgang Lutz: 9780658001703: Amazon.com: Books
 

StormFinch

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I thought I would bring this up. There is a product out on the market recently called Anatabloc. I have no association or experience with it personally, but am following information on it as an autoimmune thyroid disorder sufferer. It's main ingredient ironically enough is anatabine, an alkaloid found in all nightshade plants like nicotine. Also like nicotine, it's found in higher concentrations in tobacco. Anatabine - Wikipedia, the free encyclopedia Anatabloc is currently showing positive results in lowering both the inflammatory and autoimmune response. It's crazy expensive for a supplement, approximately $100.00 for a 30 day supply, but might be worth it for a UC sufferer that would prefer not to smoke.
 

r77r7r

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    I thought I would bring this up. There is a product out on the market recently called Anatabloc. I have no association or experience with it personally, but am following information on it as an autoimmune thyroid disorder sufferer. It's main ingredient ironically enough is anatabine, an alkaloid found in all nightshade plants like nicotine. Also like nicotine, it's found in higher concentrations in tobacco. Anatabine - Wikipedia, the free encyclopedia Anatabloc is currently showing positive results in lowering both the inflammatory and autoimmune response. It's crazy expensive for a supplement, approximately $100.00 for a 30 day supply, but might be worth it for a UC sufferer that would prefer not to smoke.

    Interesting! I relayed this info to my UC forum. Did this help get you off cigs, or help you with cravings or to cut your nic level down?
    This is prescription?, so that $100 would depend on your insurance?
    Thanks for the info, we sufferers are really grasping at straws trying to find a way to deal with this illness. There are many that are now using Biologics like Humira, which was not developed for us.As horrible as our disease is, we are being overlooked by researchers and BP.
     

    StormFinch

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    Interesting! I relayed this info to my UC forum. Did this help get you off cigs, or help you with cravings or to cut your nic level down?
    This is prescription?, so that $100 would depend on your insurance?
    Thanks for the info, we sufferers are really grasping at straws trying to find a way to deal with this illness. There are many that are now using Biologics like Humira, which was not developed for us.As horrible as our disease is, we are being overlooked by researchers and BP.

    No, as I said, I don't have any experience with it. I'm just a vaper with my own autoimmune problems. (Graves and Hashi's)

    Anatabloc is classified as a supplement and sold via the manufacturer's own website, Amazon.com or the GNC chain. The manufacturer, Rock Creek Pharmaceuticals, is owned by what used to be a tobacco manufacturer known as Star Tobacco. They are now known as Star Scientific after changing gears and putting the quit smoking aid CigRX on the market. It was the unintended anti-inflammatory side effects of the CigRX, which also contains anatabine in a lesser amount, that made them start investigating the alkaloid. Does it work? Absolutely no clue, and I've seen mixed reviews on it. The scientific studies on autoimmune markers have so far been positive however, which is why I'm keeping an eye on it.
     

    r77r7r

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    No, as I said, I don't have any experience with it. I'm just a vaper with my own autoimmune problems. (Graves and Hashi's)

    Anatabloc is classified as a supplement and sold via the manufacturer's own website, Amazon.com or the GNC chain. The manufacturer, Rock Creek Pharmaceuticals, is owned by what used to be a tobacco manufacturer known as Star Tobacco. They are now known as Star Scientific after changing gears and putting the quit smoking aid CigRX on the market. It was the unintended anti-inflammatory side effects of the CigRX, which also contains anatabine in a lesser amount, that made them start investigating the alkaloid. Does it work? Absolutely no clue, and I've seen mixed reviews on it. The scientific studies on autoimmune markers have so far been positive however, which is why I'm keeping an eye on it.

    I'm very sorry, I read thru too quickly and misunderstood.
     

    StormFinch

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    I'm very sorry, I read thru too quickly and misunderstood.

    No problem, happens to the best of us. :) My biggest problem is letting my fingers get ahead of my brain... or maybe it's fact dyslexia? You have no idea how many times some nice person on here has had to correct some backwards mistake in one of my posts. :laugh:
     

    loxmythe

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    No, as I said, I don't have any experience with it. I'm just a vaper with my own autoimmune problems. (Graves and Hashi's)

    Anatabloc is classified as a supplement and sold via the manufacturer's own website, Amazon.com or the GNC chain. The manufacturer, Rock Creek Pharmaceuticals, is owned by what used to be a tobacco manufacturer known as Star Tobacco. They are now known as Star Scientific after changing gears and putting the quit smoking aid CigRX on the market. It was the unintended anti-inflammatory side effects of the CigRX, which also contains anatabine in a lesser amount, that made them start investigating the alkaloid. Does it work? Absolutely no clue, and I've seen mixed reviews on it. The scientific studies on autoimmune markers have so far been positive however, which is why I'm keeping an eye on it.

    Thanks for the info on this :) I'm going to try it and see if it helps. I'd really love to quit completely again :)
     

    Racehorse

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    My daughter was diagnosed with ulcerative colitis when she was 14, it went into remission at 17. She's been a smoker since about the age of 15. She is now 32 and decided to quit smoking last February. Just this week, her UC came back with a vengeance, but she has been using E-cigs since the day she quit, a little over a year ago. She's using 18mg nic, so it appears that there's something else in cigarette smoke that keeps the UC at bay. I've read numerous accounts of people whose UC came back within a year after quitting, but some (not all) say the e-cigs help. I was wondering if anyone here had any information or insight on this particular problem. She doesn't want to smoke again, and I don't want to see her start again, but her UC is pretty debilitating. Thanks for any helpful information. Karen (Calypso53)

    sorry to hear about your daughter's troubles. However, I think the very nature of UC, as with any chronic illness, is the propensity to come and go....despite the best of efforts.

    I will tell you this, and you probably already know, but most of these thiings are about inflammation. You might want to schedule w/a nutritionist (gastroenterologists don't know about nutrition really) who can put your daughter on an anti-inflammatory diet.

    With all the new gene research they can actually "see" foods turning on and off inflammation markers/genes now. So it exists. :)

    I am on low inflamm diet working w/nutritionist at my hospital, and it has done WONDERS for my arthrititis. Not wonders for my social life in terms of lunching or dinner with friends but i'm willing to make sacrafice.

    Auto immune response and inflammation CAN be controlled very succesfully with just.........food. Food can be poison, or it can be medicine. I try to make mine count in the way that benefits me when I eat. :)
     
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    Racehorse

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    No, not really. There are people who are in much worse situations than I am in, but I don't feel that I'm dealing
    well at all. The best I can hope for is....distraction. And that's not living.

    But I've spun this yarn several times in here already. I feel like I'm thread-jacking.
    Sorry about that....

    I must have missed your posts. I'm glad I read this one. People here support each other about and around vaping, so if you're a vaper and bring other health problems along with quitting analogs "we" take the whole package ..... that is you. Maybe some counselling here and there, it's tough to live w/a chronic illness and esp. if you're missing organs or part of your old self. Just remember, you're still you...with or without the ability to eat normally.

    Distraction doesn't have to be put in those terms of negative, many people find joy in immersion in something like a hobby or art or whatever and couldn't that be a distraction as well but one that makes them happy. So, distract toward that which brings you some joy. :)

    You don't HAVE to handle everything well all the time. Most people don't......some days we just need to cry in our beer. You're certainly entitled.

    So is anybody who has UC or anthing else. :)
     

    zipflint

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    Thanks Racehorse, I appreciate that. I sometimes feel totally overwhelmed. Along with my own health issues, my mother was recently injured on the job and is now dealing with workman's comp. I've had to move back home to help take care of her and my grandmother as well. Actually we probably all take care of each other, and as supportive as my whole family has been....well no 36 year old man wants to live at home with his parents.

    Things are just bad, in general. I probably DO need some kind of serious counseling. I have a bachelor's in psychology, fat lotta good that did me! But it has equipped me with the ability to recognize my own signs of worsening depression. The cascading health issues that happened post-gastrectomy have really put a squeeze on my ability to engage in most of my hobbies. I was active with local musicians before the surgery, but afterwards (and especially when I developed carpal tunnel syndrome in both hands simultaneously) that tapered off pretty quickly. It's selfishly discouraging to see my friends and even my own brother move on with their lives, getting married and having kids. I feel like my life is in stasis at best, and regressing at the worst.

    See? I can be quite the bucket of self-pity!
    :blush:
     

    Jetmec

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    My daughter was diagnosed with ulcerative colitis when she was 14, it went into remission at 17. She's been a smoker since about the age of 15. She is now 32 and decided to quit smoking last February. Just this week, her UC came back with a vengeance, but she has been using E-cigs since the day she quit, a little over a year ago. She's using 18mg nic, so it appears that there's something else in cigarette smoke that keeps the UC at bay. I've read numerous accounts of people whose UC came back within a year after quitting, but some (not all) say the e-cigs help. I was wondering if anyone here had any information or insight on this particular problem. She doesn't want to smoke again, and I don't want to see her start again, but her UC is pretty debilitating. Thanks for any helpful information. Karen (Calypso53)

    It may have to do with the fact that smoking dilates your blood vessels and when you quit they start going back to normal and you get more blood circulating. My gums started bleeding really bad when I quit and that lasted about 6 months. Now they are fine. I know about UC my daughter was diagnosed with it when she was 14 also, she went through hell for a long time. It would clear up than flare up. It also caused her a lot of other medical problems. Finally when she was 34 they did surgery and removed her large intestines other wise her chances of cancer were like 95% They re hooked everything up so there is no colostomy bag. that was 5 years ago and she has been absolutely great since. When she was first diagnosed the doctors said that she would eventually have to have a colostomy bag but they have made some really great advances in treatment and surgery procedures. I really thank God that she is over all that problem.
     

    oplholik

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    There has to be more than just nicotine that helps, some other ingredient + nicotine. I sure wish someone would isolate it. After smoking for 55 years, I have mild COPD, so I don't think it would be wise for me to go back to smoking, even just 3-5 a day. I haven't tried just one, but I doubt that would do it for me.
     
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